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PROQOLID

Articles

Caron M, Perrier LL, Emery MP. In 2012, the Patient-Reported Outcomes and Quality of Life Instruments Database (PROQOLID) Celebrates a Major Feat: Its 10th Anniversary! Patient Reported Outcomes Newsletter. Spring Issue 2012; 47, pp.26-27.

Caron M, Perrier LL, Emery MP. Results from the Recent Survey Conducted Among PROQOLID Users. Patient Reported Outcomes Newsletter. Spring Issue 2012; 47, p.28.

Emery MP, Perrier LL, Acquadro C. Patient-reported outcome and quality of life instruments database (PROQOLID): frequently asked questions. Health Qual Life Outcomes. 2005 Mar 8;3(1):12.

Emery MP, Tamburini M, Pasquier E. QOLID: a new quality of life instruments database available on the Internet – www.QOLID.org. Quality of Life Newsletter. 2002;28(January-August):13

Emery MP, Tamburini M, Pasquier E. The Quality of Life Instruments Database (QOLID) project. Quality of Life Newsletter. 2001:27(July-Dec):21

Posters

Céline Desvignes-Gleizes, Mar Mañú Pereira, Mariangela Pellegrini, Gavin Mc Donough, Caterina Lucano, Sonia Bothorel, Ana Rath. Development of a Patient-Reported Outcome Measures (PROMs) repository for use in Rare Diseases. RE(ACT) Congress and IRDiRC Conference 2023

B. Arnould, C. Desvignes-Gleizes, L.L. Perrier, C. Acquadro, C. Rodwell, A. Olry, A. Rath. Mapping PROQOLID To Rare Diseases: An On-Going Colaboration Between Mapi Reasearch Trust And Orphanet. ISPOR 2019.

Emery MP, Caron M, Perrier LL, Conway K. Patient-Reported Outcome and Quality of Life Instruments Database (PROQOLID): Evolution of Content, Structure, and Functionalities (2001-2012). Presented at the 19th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), Budapest, Hungary, October 2012.

Caron M, Emery MP, Murison A, Perrier LL, Acquadro A. Overview of PRO Instruments from the PROQOLID Database for use in Taiwan. Presented at ISPOR 5th Asia Pacific-Conference, Taipei, Taiwan, September 2012.

Emery MP, Caron M, Perrier LL. PROQOLID Database: where are we ten years after its launch? Presented at the ISPOR 17th Annual International Meeting, Washington DC, USA, June 2012.

Perrier LL, Caron M, Emery MP. Overview of psychiatric Patient-Reported Outcome (PRO) instruments from the ProQolid database for use in South America. Presented at the 15th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), Monteviedo, Uruguay, October 2008.

Perrier LL, Emery MP, Caron M. Overview of paediatric Patient-reported Outcome instruments from the ProQolid database: pathologies and level of validation. Quality of Life Research. 2007;13:A-125. Presented at the 14th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Toronto, Canada October 10 2007.

Emery MP, Perrier L-L, Khoury V. Regular update of PROQOLID, the Patient-Reported Outcome and Quality of Life Instruments Database (www.proqolid.org). Quality of Life Research. 2005;14(9):2061. Presented at the 12th Annual Conference of the International Society for Quality of Life Research (ISOQOL), San Francisco, USA, October 2005.

Emery MP, Tamburini M, Pasquier E. The Quality Of Life Instruments Database (QOLID). Quality of Life Research. 2001;10(3):260. Presented at the 8th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Amsterdam, The Netherlands, November 2001 and at the 9 th Annual Symposium for Quality of Life Evaluation (DIA), Hilton Head, USA, March 2002.

Oral Presentations

Caron M, Perrier L.L, Vaissier V, Savre I, Acquadro C, Emery M.P. Update of The Patient-Reported Outcome And Quality Of Life Instruments Database (PROQOLID) Using The FDA Guidance On Pro Measures. Value in Health. November 2011; 14(7), pA239:UT2. Presented at ISPOR 14th Annual European Congress, Madrid - Spain, November 2011.

Emery MP, Anfray C. Analysis of the Patient-Reported Outcome (PRO) endpoints found in labeling claims of asthma drugs in Europe. Presented at the Annual Congress 2007 of the European Respiratory Society (ERS), Stockholm, Sweden September 2007.