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  • Clinical Outcome Assessments
    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
    Collaborating with questionnaire authors.
    The most trusted distributor of COAs

    700+ exclusive COA distributions on behalf of their copyright owners

    Author discussing assessment development.
    PROQOLID™: the largest COA database

    7,000+ COAs described in details and accessible in this unique database

  • Services
    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    COA Databases Patient-Centered Endpoint Intelligence COA Licensing Translation and Linguistic Validation eCOA Licensing COA Repository
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    About ePROVIDE™

    Online access to all our services and COA databases

    Working on validation studies.
    What are eBooklets?

    Find out more about this step-by-step guidance for valid digitization of COAs

  • Author Collaboration
    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    COA distribution COA copyright and protection Promotion of COAs and developers Testimonials
    Reviewing translated assessments.
    Catalog of COAs distributed by Mapi Research Trust

    800+ exclusive distributions of COAs, accessible in ePROVIDE

  • Resources
    Resources

    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    Blog Publications Useful links Webinar recordings Whitepapers
    Whitepaper-Digitizing-COAs.jpg
    New whitepaper

    Digitizing COAs: A streamlined approach to approval

    Developing new PRO instruments.
    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

  • News & Events
    News & Events

    Stay informed with our latest news and check all our upcoming events. SUBSCRIBE to get email updates.

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    Scientific meeting about COAs.
    News
    Meeting with instrument developers.
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    Discussion about PRO measures.
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  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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    Team

    A global team of multi-disciplinary experts

    Team analyzing PRO data.
    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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  1. Home
  2. Resources
  3. Publications
  4. Therapeutic areas
  5. Infectious disease, immunology, vaccines

Infectious disease, immunology, vaccines

  • 2023. Kraft N. et al. Patients’ Needs in Assessing Long COVID: A Review of Relevant Concepts and Patient-Reported Outcomes. Poster abstract at ISPOR Europe 2023.
  • 2021. Desvignes-Gleizes C et al. - Review of COVID-19-Related Clinical Outcome Assessments (COAS) to Support the Development of an Effective Treatment of COVID-19 .
  • 2018. Svedbom A et al. - Quality of life after hip, vertebral, and distal forearm fragility fractures measured using the EQ-5D-3L, EQ-VAS, and time-trade-off: Results from the ICUROS.
  • 2016. Martinez F et al. - Scoring and psychometric validation of the ‘Determinants of Intentions to Vaccinate’ (DIVA©) questionnaire.
  • 2012. Breuil V et al. - Validation of the adherence evaluation of osteoporosis treatment (ADEOS) questionnaire for osteoporotic post-menopausal women.
  • 2010. Le Gal M et al. - Linguistic validation of six patient-reported outcomes instruments into 12 languages for patients with fibromyalgia.
  • 2009. Chevat C et al. - Development and psychometric validation of a self-administered questionnaire assessing the acceptance of influenza vaccination: the Vaccinees’ Perception of Injection (VAPI©) questionnaire.
  • 2009. Spire B et al. - Simplification and first validation of a short battery of patient questionnaires for clinical management of HIV-infected patients: The HIV-SQUAD (Symptom QUality of life ADherence) questionnaire®.
  • 2005. Acquadro C et al. - Linguistic validation of the Cardiff Wound Impact Schedule into French, German and US English.
  • 2003. Acquadro C et al. - Quality of life in multiple sclerosis: Translation in French Canadian of the MSQoL-54

In this section
In this section
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    • Whitepaper | COAs and copyright
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    • Whitepaper | Digitizing COAs: A streamlined approach to approval
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