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    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
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    700+ exclusive COA distributions on behalf of their copyright owners

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    PROQOLID™: the largest COA database

    7,000+ COAs described in details and accessible in this unique database

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    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    Online access to all our services and COA databases

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    Find out more about this step-by-step guidance for valid digitization of COAs

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    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    Catalog of COAs distributed by Mapi Research Trust

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    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    New whitepaper

    Digitizing COAs: A streamlined approach to approval

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    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

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  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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    A global team of multi-disciplinary experts

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    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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  3. Publications
  4. Development projects

Development projects

Aiyegbusi, O.L., Cruz Rivera, S., Roydhouse, J. et al. Recommendations to address respondent burden associated with patient-reported outcome assessment. Nat Med (2024). Full article.

Alves Favaro M, De Giorgio F, Brooks T, Bothorel S. DiMe Library of Digital Endpoints: Strengths, Weaknesses, and Pathways for Improvement in Digital Health Research. Poster abstract at ISPOR Europe 2023.

Mouchet J, Emery MP, Maier W. Development of a Post-Marketing Requirements (PMR) Database. Poster presented at the ISPOR 15th Annual European Congress, Berlin, Germany, November 2012.

Mouchet J, Albrieux M, Maier W. Development of a regulatory post-marketing studies database. Poster presented at the ISPOR 17th Annual International Meeting, Washington DC, USA, June 2012.

Caron M, Mouchet J, Emery MP, Longin J, Maier W. Development of a regulatory post-marketing studies database. Poster presented at the International Conference on Pharmacoepidemiology & Therapeutic Risk Management, Rhode Island - USA, August 2009.

Caron M, Mouchet J, Emery MP, Longin J, Maier W. Development of a regulatory post-marketing studies database. Presented at the 14th Annual International Meeting of the ISPOR, Orlando - USA, May 2009.

Aquadro C, Konway C, Wolf B, Anfray C, Hareendran A, Mear I, Nadjar A. Development of a standardized classification system for the translations of Patient-Reported Outcome (PRO) measures. Quality of Life Newsletter. 2008; 39, p5.

Conway K, Mear I. Rationale for the Development of a Classification System for the Translations of PRO Instruments. Poster presented at the 15th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), Montevideo - Uruguay, October 2008.

Aquadro C, Konway C, Wolf B, Anfray C, Hareendran A, Mear I, Nadjar A. Development of a standardized classification system for the translations of Patient-Reported Outcome (PRO) measures. Poster presented at the 13th Annual International Meeting (ISPOR), Toronto - Ontario, Canada, May 3-7, 2008.

Duracinsky M, Cervoni J, Vincent V, LAscoux C, Bourgarit A, Acquadro C, Conway K, Wu, A, Chassany O. Validation d'un questionnaire de qualit de vie spcifique de la lipodystrophie lie la pathologie VIH. Poster, La Revue de Mdecine Interne, 2004; 25(Supp 1), p189.

Carbonnel H, Longin J, Lobo-Luppi L. Acquadro C. Use of Patient-Reported Outcomes in Gene Therapy Clinical Trials. Quality of Life Newsletter. 2003; 30, p20-22

Girod I, Keininger DL, de la Loge C, Hunter M. Presentation of the 23-item Women's Health Questionnaire (WHQ): scoring and interpretation issues. Value in Health. 2000; 3(5), p341-342. Poster presented at the 3 rd Annual European Meeting, International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Antwerp - Belgium, November 2000.

Girod I, Keininger DL, de la Loge C, Hunter M. Methodological issues in evaluating conceptual equivalence: applications of the Women's Health Questionnaire. Value in Health. 2000; 3(5), p342. Poster presented at the 3rd Annual European Meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Antwerp - Belgium, November 2000.

Girod I, Keininger DL, de la Loge C, Hunter M. Presentation of the 23-item Women's Health Questionnaire (WHQ): scoring and interpretation issues. Quality of Life Research. 2000; 9(3), p25. Poster presented at the 7th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vancouver - Canada, October 2000.

Girod I, Keininger DL, de la Loge C, Hunter M. Methodological issues in evaluating conceptual equivalence: applications of the Women's Health Questionnaire. Quality of Life Research. 2000; 9(3), p25. Poster presented at the 7th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vancouver - Canada, October 2000.

Manificat S, Dazord A, Mechoud J, Rodrigues C, Bouttier M, Conway K. School integration for disabled children: a quality of life study. Quality of Life Newsletter. 2002; 28(January-August), p16

Manificat S, Dazord A, Langue L, Danjou G, Escoffier Ch, Gerbay A, Dudognon P, Morin I, Milongo L, Payot F, Raiz AM, Simon-Ghedriri MJ, Stagnara J. Impact du mode d'allaitement du nourrisson sur la qualit de Vie de la mre et la qualit de vie de l'enfant: rsultats d'une tude pilote. Le Pdiatre. 2000;Tome XXXVI (1), p17-23.

Girod I, Keininger DL; de la Loge C, Hunter M. Development of a new scoring of the Women's Health Questionnaire (WHQ). Value in Health. 2000; 3(2), p103. Poster presented at the 5th Annual International Meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Crystal City - USA, May 2000.

Girod I, Adesina A, Keininger DL, , Wool C, Marquis P. Implications of menopausal symptoms on quality of life. Value in Health. 1999; 2(3), p209. Poster presented at the 4th Annual International Meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Crystal City - USA, May 1999.

Keininger DL, Abetz L, Girod I, Adesina A, Dubois D, Wool C, Marquis P. Comparison of Quality of Life between Menopausal women and age-matched peers. Value in Health. 1999; 2(3), p210. Poster presented at the 4th Annual International Meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), Crystal City - USA, May 1999.

Conway K, Manificat S. Dazord A. Infant QoL: a new instrument. Workshop presented at the 6th Annual Symposium of Contributed Papers on QoL Evaluation, Drug Information Association, Hilton Head - USA, March 1999.

Manificat S, Dazord A, Conway K, Chevallet L, Emery MP, Langue L, Danjou G. Infant Quality of Life: a new instrument. Oral presentation at the 6th annual symposium of contributed papers on QoL evaluation, Drug Information Association, Hilton Head - USA, March 1999.

Manificat S, Dazord A, Langue J, Danjou G, Bauche P, Bovet F, Cubell JM, Luchelli R, Tockert E, Conway K. A new intrument to evaluate infant quality of life. Quality of Newsletter. 1999; 23(Sept-Dec), p7-8.

Spertus J, Patrick Green C, Conway K, Uzun V. Creating a New Disease-Specific Health Measure for Congestive Heart Failure: a Prototype for Instrument Development in the Current Era. Quality of Life Newsletter. 1998; 20(Sept-Dec), p9-10.

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    • Whitepaper | Digitizing COAs: A streamlined approach to approval
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