Pediatrics | Mapi Research Trust

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Articles

2017. Wang YG et al. – Assessing narcolepsy with cataplexy in children and adolescents: Development of a cataplexy diary and the ESS-CHAD
2017. Benmedjahed K et al. – Assessing sleepiness and cataplexy in children and adolescents with narcolepsy: A review of current patient-reported outcomes
2017. Carcao et al. – Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX
2015. De Coster I et al. – Assessment of preparation time with fully-liquid versus non-fully liquid paediatric hexavalent vaccines
2013. Lapillonne A et al. – Development of a questionnaire to assess the impact on parents of their infant’s bronchiolitis hospitalization
2012. Lapillonne A et al. – Impact on parents of bronchiolitis hospitalization of full-term, preterm and congenital heart disease infants
2012. Diez-Domingo J et al. – The impact of childhood acute rotavirus gastroenteritis on the parents’ quality of life: Prospective observational study in European primary care medical practices
2012. Rofail D et al. – Factors contributing to the success of folic acid public health campaigns
2011. Yi Y et al. – Economic burden of neural tube defects and impact of prevention with folic acid: A literature review
2011. Chaléat-Valayer E et al. – A French observational study of botulinum toxin use in the management of children with cerebral palsy: BOTULOSCOPE

Posters & Presentations

2018. EAHAD Congress – Quality of life and satisfaction of children and adults with severe hemophilia A treated with turoctocog alfa pegol
2017. Congrès du G.F.H.G.N.P – Pleurs et inconfort du nourrisson (ColIQ©): Développement d’une échelle d’évaluation standardisée
2016. Journées d’Automne de Pédiatrie et Néonatologie – Prise en charge des pleurs et inconfort digestif du nourrisson: Evaluation standardisée en consultation pour les parents
2016. European Sleep Research Society Meeting – The Paediatric Narcolepsy Screening Questionnaire: Data from the evaluation of a new tool to help paediatricians diagnose narcolepsy
2016. ECRD Conference – The Role of COAs in the Drug Approval Process of Products for the Treatment of Duchenne Muscular Dystrophy (USA and Europe)
2016. ISPOR Annual International Meeting – The Role of Clinical Outcome Assessment (COA) Data in the Drug Approval Process of Products for the Treatment of Duchenne Muscular Dystrophy in the USA and Europe: A Review of Guidance Documents and Authorizations of Medicinal Products
2016. Congrès 2016 de la Société Française de Pédiatrie – Development of a Tool Assessing the Impact of Infant Colitis on Parents’ Daily Lives: Qualitative Research
2015. Associated Professional Sleep Societies (SLEEP) Annual Meeting – Developing outcome measures for assessing narcolepsy with cataplexy in children and adolescents
2015. ISPOR Annual International Meeting – Challenges in Translating the CONNERS 3rd Edition-Parent into 12 Languages
2014. ISPOR European Congress – Development of the Behavior Rating Inventory of Executive Function – Preschool Version (BRIEF-P) in 10 Languages
2014. ISPOR Annual International Meeting – Development of the Behavior Rating Inventory of Executive Function (BRIEF) in Five Languages
2013. ISPOR European Congress – Do EMA and FDA Have Different Opinions/Requirements in Terms of Pediatric Studies for Sitagliptin (Alone or in Combination)?
2012. ISPOR European Congress – Review of all Products Authorized by the European Medicines Agency from 1995 to 2011 in Regards to Pediatric Investigation Plan Applications
2012. World Hemophilia Congress – Cross-Cultural Adaptation of the Canadian Hemophilia Outcomes – Kids’ Life Assessment Tool (CHO-KLAT) in 11 Languages
2012. ISPOR Annual International Meeting – Symptoms and Management of Teething: Parents-Reported Outcomes
2011. ISPOR European Congress – Testing of a Conceptual Model of Asthma in Adolescents
2011. ISPOR European Congress – Are Different Spanish Versions of PRO Measures Necessary? The Case Study of the PedsqlTM 4.0 Generic Core Scales
2011. ISPOR European Congress – What are the Factors Influencing Parental Apprehension About Consenting Children to Participate in Pediatric Observational Studies? A Survey Conducted in France with in Fine Pharma, a Pharmacist Network
2011. ISPOR European Congress – Epidemiology of Staphylococcus Aureus Infections in Children: A Literature Review of the Last 10 Years
2011. ISOQOL Annual Conference – The Impact of Irritable Bowel Syndrome with Constipation (IBS-C) on Children and Adolescents: Results from Qualitative Research
2011. ISOQOL Annual Conference – Is it necessary to develop different Spanish versions of PRO measures? The case study of the PedsQL 4.0 Generic Core Scales
2011. ISOQOL Annual Conference – The Impact of Chronic Constipation (CC) on Children and Adolescents: Results from Qualitative Research
2010. ISPOR European Congress – Child and Parent Reports of Symptoms of Irritable Bowel Syndrome with Constipation (IBS-C): Results of Qualitative Interviews
2010. ISOQOL Annual Conference – Development of a Pediatric Chronic Constipation Symptom Measures: Results of Qualitative Interviews with Children and Their Parents
2010. ISOQOL Annual Conference – An Introduction to Pediatric Patient Report Outcomes and their Inclusion as Endpoints in Pediatric Clinical Trials
2010. ISPOR Annual International Meeting – Using the Pediatric Quality of LifeTM (PEDSQLTM) Diabetes Module to Study Similarities and Differences in Target Languages
2009. ISPOR Annual International Meeting – Development of a Specific Questionnaire Assessing the Impact on Parents of an Infant’s Bronchiolitis Hospitalization
2008. ISPOR European Congress – Development and Psychometric Validation of a New Questionnaire Measuring the Impact of Child Gastroenteritis on Parents