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  • Clinical Outcome Assessments
    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
    Collaborating with questionnaire authors.
    The most trusted distributor of COAs

    700+ exclusive COA distributions on behalf of their copyright owners

    Author discussing assessment development.
    PROQOLID™: the largest COA database

    7,000+ COAs described in details and accessible in this unique database

  • Services
    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    COA Databases Patient-Centered Endpoint Intelligence COA Licensing Translation and Linguistic Validation eCOA Licensing COA Repository
    Team reviewing questionnaire content.
    About ePROVIDE™

    Online access to all our services and COA databases

    Working on validation studies.
    What are eBooklets?

    Find out more about this step-by-step guidance for valid digitization of COAs

  • Author Collaboration
    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    COA distribution COA copyright and protection Promotion of COAs and developers Testimonials
    Reviewing translated assessments.
    Catalog of COAs distributed by Mapi Research Trust

    800+ exclusive distributions of COAs, accessible in ePROVIDE

  • Resources
    Resources

    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    Blog Publications Useful links Webinar recordings Whitepapers
    Whitepaper-Digitizing-COAs.jpg
    New whitepaper

    Digitizing COAs: A streamlined approach to approval

    Developing new PRO instruments.
    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

  • News & Events
    News & Events

    Stay informed with our latest news and check all our upcoming events. SUBSCRIBE to get email updates.

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    Scientific meeting about COAs.
    News
    Meeting with instrument developers.
    Conferences
    Discussion about PRO measures.
    Webinars
  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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    Collaborative research session.
    Team

    A global team of multi-disciplinary experts

    Team analyzing PRO data.
    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

  • Contact
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General

Articles

  • Direct-to-patient contact methodology in the context of rare diseases and orphan drugs.
  • Tips and Tricks for Using Direct-to-Patient Contacts in Pharmacoepidemiological Studies.
  • Direct-to-patient study designs for pharmacovigilance.
  • Direct to Patient Contact: An Added Value to Follow up Patients in Observational, Longitudinal Studies.
  • Challenges to obtain real-life data in observational studies: What are the solutions when the patient is the main data provider?
  • Direct-to-Patient Contact adds value to Late-Phase Research.
  • Reminders Help Improving Completion Rate Of Home-Administered Lifestyle Questionnaires.
  • Study designs using a direct-to study participant approach for self-reported data collection.
  • Direct-to-patient contact and proactive pharmacovigilance system: a case study.
  • Cost Per Patient In Non-Interventional Studies and Added Value of Direct To Patient Contact Service.
  • ISPOR 2014 Posters
  • Intellectual property, copyright issues and distribution of Patient-Centered Outcomes.
  • PROLabels
  • PROQOLID
  • Literature Reviews
  • IQOD
  • ERIQA/PRO Harmonization Group
  • Education
  • Development Projects
  • Cochrane HRQoL Methods Group.

Posters & Presentations

  • 2017. Clinical Trials on Alzheimer’s Disease Meeting – Providing culturally sensitive training and monitoring to clinicians administering functional assessments in dementia global trials

 

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