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The ERICA Project
Collaboration in rare disease: ERICA (European Rare disease research Coordination and support Action) Consortium -
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Distribution partnership with Inflexxion
Exclusive licensing and distribution agreement for Inflexxion's scales -
A newly published article in the Orphanet Journal of Rare Diseases
To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases -
Mapi Research Trust announces new distribution partnership with the Center for Environmental Therapeutics
MRT is now the exclusive distributor of CET's scales -
Health related quality of life scores of typically developing children and adolescents around the world
A meta‑analysis with meta‑regression by Nikki Ow and Nancy E. Mayo -
New COA website: Zarit Burden Interview (ZBI) Questionnaire
MRT unveils new Clinical Outcome Assessments (COA) Website for the Zarit Burden Interview (ZBI) Questionnaire -
The patient’s voice in the evaluation of orphan drugs
How can health technology assessment bodies take into account the voice of patients with rare diseases when granting access to orphan drugs. -
Journal of Patient-Reported Outcomes
The International Society for Quality of Life Research (ISOQOL) and Editors are proud to announce that Journal of Patient-Reported Outcomes -
