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    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

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    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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2016 Winner

Metastatic Breast Cancer (MBC): improving the Quality of Life of MBC patients through strengthening connections

Applicant:

Runcie C.W. Chidebe, 
Executive Director, Project PINK BLUE – Health & Psychological Trust Centre, Nigeria.

Abstract:

Project PINK BLUE – Health & Psychological Trust Centre is a community-based cancer non-profit with focus on cancer awareness, free screening for rural hard-to-reach communities, patient navigation, fundraising support and advocacy. Our goal is to phase-out advanced/late diagnosis of cancer in Nigeria and to reduce the incidence of cancer all over Africa.


Over 70% - 80% of breast cancer patients present metastatic/advanced breast cancer in Nigeria. An estimated 90% of breast cancer deaths are as a result of metastatic diseases, either at diagnosis or recurrence. This, in turn raises, the burden of the disease both to the patients and to the healthcare delivery system. 
Since metastatic breast cancer (MBC) is that stage of cancer that no one understands for now, thereby incurable; quality of life (QoL) of women living with MBC is important and needs our investment. To improve their QoL, MBC patients needs psychological support, patient’s group sessions, and peer support as much as they need clinical care. 

This study aimed at improving the quality of life of MBC patients through the creation of MBC support group and the development of a mobile application for peer support and patient navigation.  

 

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