Mapi Research Trust

Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Patient-Centered Outcome (PCO) information

Mapi Research Trust promotes scientific approaches in the PCO field and encourages exchanges between academics, pharmaceutical companies, and international organisations around the world in the service of incorporating the patient’s voice into every step of the development process of new treatments.

For nearly two decades Mapi Research Trust has been a direct contributor to nearly every translational science research program incorporating PCO. We offer free and subsidized access to thousands of independent and academic research programs in over 130 countries every year. In this manner Mapi Research Trust contributes some 4 M€ a year in services that support academic research focusing on the improvement of patients’ lives.

Mapi Research Trust is the #1 provider of Patient-Centered Outcomes Research information worldwide:

  • More than 4,000 Clinical Outcomes Assessments (COA)
  • More than 40,000 COA translations
  • A research library with more than 29,000 COAs
  • Directly distributes over 600 questionnaires on behalf of their authors