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Mapi Research Trust
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  • History
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Mapi Publications

General

Articles

  • Direct-to-patient contact methodology in the context of rare diseases and orphan drugs.
  • Tips and Tricks for Using Direct-to-Patient Contacts in Pharmacoepidemiological Studies.
  • Direct-to-patient study designs for pharmacovigilance.
  • Direct to Patient Contact: An Added Value to Follow up Patients in Observational, Longitudinal Studies.
  • Challenges to obtain real-life data in observational studies: What are the solutions when the patient is the main data provider?
  • Direct-to-Patient Contact adds value to Late-Phase Research.
  • Reminders Help Improving Completion Rate Of Home-Administered Lifestyle Questionnaires.
  • Study designs using a direct-to study participant approach for self-reported data collection.
  • Direct-to-patient contact and proactive pharmacovigilance system: a case study.
  • Cost Per Patient In Non-Interventional Studies and Added Value of Direct To Patient Contact Service.
  • ISPOR 2014 Posters
  • Intellectual property, copyright issues and distribution of Patient-Centered Outcomes.
  • PROLabels
  • PROQOLID
  • Literature Reviews
  • IQOD
  • ERIQA/PRO Harmonization Group
  • Education
  • Development Projects
  • Cochrane HRQoL Methods Group.

Posters & Presentations

  • 2017. Clinical Trials on Alzheimer’s Disease Meeting – Providing culturally sensitive training and monitoring to clinicians administering functional assessments in dementia global trials

About Us

  • Experience
  • Team
  • Publications
  • Events
  • PRO Scientific Advisory Committee
  • Scientific Advisor
  • Catherine Pouget Award
  • French Gender Equality Index

Questionnaires

  • Library & Questionnaires
  • Questionnaires Distributed By Mapi Research Trust
  • Chronic Treatment Acceptance Questionnaire (ACCEPT©)
  • Baseline and Transition Dyspnea Indexes (BDI TDI)
  • Insomnia Severity Index (ISI)
  • Leeds Sleep Evaluation (LSEQ)
  • Oswestry Disability Index (ODI)
  • Zarit Burden Interview (ZBI)

Our Resources

  • Worldwide Experts
  • Databases
  • Mapi Publications
  • Author Webinars

Services

  • PROVIDE
  • ePROVIDE
  • Questionnaire Licensing

Author Collaboration

  • About
  • Questionnaire Copyright
  • Questionnaire Distribution
  • Linguistic Validation of Questionnaires: Partnership Collaboration
  • Migration of Questionnaires into Electronic Format: Partnership Collaboration
  • Questionnaire Information Booklet
  • Promotion of Questionnaires and Authors
  • Author Testimonials

Collaborations

  • Mapi University
  • Cochrane Collaboration
  • ERIQA
  • PRO Newsletter
  • Previous Research Projects

© 2021 Mapi Research Trust.