The voice for Patient-Centered Outcomes (PCO) research professionals worldwide
Distribution partnership with Inflexxion
Exclusive licensing and distribution agreement for Inflexxion's scales
A newly published article in the Orphanet Journal of Rare Diseases
To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases
Mapi Research Trust announces new distribution partnership with the Center for Environmental Therapeutics
MRT is now the exclusive distributor of CET's scales
Health related quality of life scores of typically developing children and adolescents around the world
A meta‑analysis with meta‑regression by Nikki Ow and Nancy E. Mayo
New COA website: Zarit Burden Interview (ZBI) Questionnaire
MRT unveils new Clinical Outcome Assessments (COA) Website for the Zarit Burden Interview (ZBI) Questionnaire
The patient’s voice in the evaluation of orphan drugs
How can health technology assessment bodies take into account the voice of patients with rare diseases when granting access to orphan drugs.
Journal of Patient-Reported Outcomes
The International Society for Quality of Life Research (ISOQOL) and Editors are proud to announce that Journal of Patient-Reported Outcomes
Reproducibility: A primer on semantics and implications for research
A new book by Kathleen Lohr
IQWIG’s systematic reviews of guidelines
Timely reviews of IQWIG extracts of final reports
Access to treatment: unequal care for European rare disease patients
Access for existing rare disease treatments