The voice for Patient-Centered Outcomes (PCO) research professionals worldwide
New COA website: Zarit Burden Interview (ZBI) Questionnaire
MRT unveils new Clinical Outcome Assessments (COA) Website for the Zarit Burden Interview (ZBI) Questionnaire
The patient’s voice in the evaluation of orphan drugs
How can health technology assessment bodies take into account the voice of patients with rare diseases when granting access to orphan drugs.
Journal of Patient-Reported Outcomes
The International Society for Quality of Life Research (ISOQOL) and Editors are proud to announce that Journal of Patient-Reported Outcomes
Reproducibility: A primer on semantics and implications for research
A new book by Kathleen Lohr
IQWIG’s systematic reviews of guidelines
Timely reviews of IQWIG extracts of final reports
Access to treatment: unequal care for European rare disease patients
Access for existing rare disease treatments
May is national asthma and allergy awareness month
ACQ1 and the Asthma Control Test, core measures for National Institutes of Health–initiated clinical research in adults
Capturing the patient’s perspective through Patient-Reported Outcome questionnaires
PRO questionnaires developed by Sanofi
A new book: Quality of Life – the assessment, analysis and reporting of patient-reported outcomes
Analysis and interpretation of quality–of–life assessments
6th Edition of the AFCROS Clinical Research Day
Clinical research in France