2011. Dias-Barbosa C et al. – Considering the patient perspective for assessing the outcomes of diabetes lifestyle modification programmes

 

Dias-Barbosa C, Arnould B, Gruenberger J-B, Schwarz PE. Considering the patient perspective for assessing the outcomes of diabetes lifestyle modification programmes. Br J Diabetes Vasc Dis. 2011;11:187-92.

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Abstract

Current evidence shows that type 2 diabetes can be effectively prevented and delayed by lifestyle modifi- cation. After careful development and pilot testing, a rigorous evaluation of such programmes is crucial to assess their effectiveness prior to large-scale implementation. Inte- grating the patient perspective in this evaluation is essential. In principle, patient-reported outcomes (PRO) questionnaires can address this key question. However, researchers and clinicians lack a clear framework to make a sound selection of appropriate measures among the large set of possible questionnaires. As a consequence, it is unclear what is the most useful information to be captured from patients when assessing a new programme, so that it can be determined whether the programme can be generalised to a larger population: is it health-related quality of life, satisfaction or something different which could predict the long-term suc- cess of the programme? We recommend a specific approach, better adapted to the nature of the intervention, and sug- gest a selection of a few existing PRO measures that could satisfy the requirements.