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Health related quality of life scores of typically developing children and adolescents around the world: a meta analysis with meta regression by
Check out this meta-analysis by Nikki Ow and Nancy Mayo about the Pediatric Quality of Life Inventory, the PedsQL™ developed by Dr. James W. Varni. This review was conducted on...
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Mapi Research Trust Announces New Distribution Partnership with the Center for Environmental Therapeutics
Mapi Research Trust (MRT) is excited to announce a new partnership with the Center for Environmental Therapeutics (CET) for the distribution of its scales. The CET is an independent, non-profit...
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The patient’s voice in the evaluation of orphan drugs
This article is based on an issue panel given at the ISPOR 19th Annual European Congress (2016). To view the authors’ presentations, go to www.ispor.org/Event/ReleasedPresentations/2016Vienna#issuepanelpresentations. The patient’s voice in the...
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Assuring success from regulatory to global market access of rare disease treatments
We invite you to attend Mapi’s workshop entitled “Assuring Success from Regulatory to Global Market Access of Rare Disease Treatments” to be held at the World Orphan Drug Congress in...
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IQWIG’s systematic reviews of guidelines are now available in the PROINSIGHT™ database!
The PROINSIGHT™ database centralizes and summarizes published regulatory recommendations concerning the use of clinical outcome assessments (COAs) (cf. Glossary) to determine treatment benefit and to inform on drug approval and...
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The Journal of Patient-Reported Outcomes has published its first articles
The International Society for Quality of Life Research (ISOQOL) and Editors are proud to announce that Journal of Patient-Reported Outcomes, a new open access journal, has published its first articles. Read...
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A New Book! Reproducibility: A primer on semantics and implications for research
Discover a new publication by Kathleen Lohr Citation Pellizzari, E., Lohr, K., Blatecky, A., & Creel, D. (2017). Reproducibility: A primer on semantics and implications for research. (RTI Press Publication...
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Mapi Creates Dedicated Patient Centered Sciences Unit by Combining Patient Centered Outcomes, Patient Insights and Engagement and Direct To Patient Contact Services
Mapi Creates Dedicated Patient Centered Sciences Unit by Combining Patient Centered Outcomes, Patient Insights and Engagement and Direct To Patient Contact Services
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Access to treatment: Unequal care for European rare disease patients
Access to treatment: Unequal care for European rare disease patients Authors: Sandra Courbier, Rare Barometer Leader1; Erwan Berjonneau, Rare Barometer Research Executive1; François Houyez, Treatment Information and Access Director, Health...
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Discover Mapi's articles published in 2017
Discover Mapi’s articles published in 2017 Thirty articles published (including one book chapter). In many therapeutic areas such as Cardiovascular Diseases, Infectious Diseases, Neurological Disorders, Oncology, Psychiatry, Rare Diseases, and...
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May Is National Asthma and Allergy Awareness Month
May Is National Asthma and Allergy Awareness Month Each year, the Asthma and Allergy Foundation of America (AAFA) declares May to be “National Asthma and Allergy Awareness Month.” It’s...
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Mapi Research Trust Unveils New Clinical Outcome Assessments (COA) Website for the Zarit Burden Interview (ZBI) Questionnaire
Mapi Research Trust, the leading curator and license distributor of Clinical Outcome Assessments (COAs) and Mapi Language Services, the most trusted provider of linguistic validation, today announced the launch of...
