Questionnaires Distributed By The Mapi Research Trust
Below is a partial list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. For full the full listing and any questions on these instruments please visit ePROVIDE.
PedsQL: Pediatric Quality of Life Inventory
Varni James W
Generic
AAIQOL: Activity and Affect Indicators of QOL
Albert Steven M, PhD, MSPH
Nervous system diseases; Psychiatry/Psychology
ACCEPT: Chronic Treatment Acceptance Questionnaire
Mapi
Generic
ACQ: Asthma Control Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases
ACTS: Anti-Clot Treatment Scale
Cano Stefan; Lamping Donna L
Cardiovascular diseases; Respiratory tract diseases
ADCPQ: Alzheimer’s Disease Caregiver Preference Questionnaire
Novartis Pharmaceuticals Corporation; Mapi
Nervous system diseases; Psychiatry/Psychology
ADRQL: Alzheimer’s Disease-Related Quality of Life
Black Betty S; Kasper Judith D; Rabins Peter V
Nervous system diseases; Psychiatry/Psychology
AQLQ: Asthma Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases
ARTS: OsteoARthritis Treatment Satisfaction Questionnaire
Pfizer (France); Mapi
Musculoskeletal diseases
ASRS: Augmentation Severity Rating Scale
The European Restless Legs Syndrome Study Group (EURLSSG)
Nervous system diseases; Psychiatry/Psychology
AUQUEI: Pictured Child’s Quality of Life Self Questionnaire
Dazord Alice; Manificat Sabine
Generic
AdolRQLQ: Adolescent Rhinoconjunctivitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases
BASDAI: Bath Ankylosing Spondylitis Disease Activity Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases
BASFI: Bath Ankylosing Spondylitis Functional Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases
BASMI: Bath Ankylosing Spondylitis Metrology Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases
BDI-TDI: Baseline and Transition Dyspnea Indexes
Mahler Donald A
Respiratory tract diseases; Congenital, hereditary, and neonatal diseases and abnormalities; Digestive system diseases; Immune system diseases
BI: Barthel Index
Mahoney Florence I; Barthel Dorothea W
Generic
BREAST-Q: BREAST-Q
Pusic Andrea L; Cano Stefan; Klassen Anne F
Surgical Procedures, Operative
CASC: Comprehensive Assessment of Satisfaction with Care
Bredart Anne
Neoplasms
CCQ: Clinical COPD Questionnaire
van der Molen Thys
Respiratory tract diseases
CD-QOL: Celiac Disease Quality of Life Measure
Drossman Douglas; Dorn Spencer
Digestive system diseases; Nutritional and metabolic diseases
CECA: Cuestionario Específico en Condilomas Acuminados
Badia Xavier
Skin and connective tissue diseases; Virus diseases
CHES-Q: Current Health Satisfaction Questionnaire
Janssen Global Services, LLC (USA)
Endocrine system diseases; Nutritional and metabolic diseases
CQLQ©: Cough Quality of Life Questionnaire
Irwin Richard S., MD; Fletcher Kenneth E.; French Cynthia T.
Pathological conditions signs and symptoms; Respiratory tract diseases
Contilife®: Quality of Life Assessment Questionnaire Concerning Urinary Incontinence
Sanofi Aventis; Mapi
Pathological conditions signs and symptoms; Urologic diseases
D-FIS: Daily Fatigue Impact Scale
Fisk John D
Pathological conditions signs and symptoms
DFS: Diabetic Foot Ulcer Scale
Janssen Global Services, LLC (USA); Mapi
Skin and connective tissue diseases; Endocrine system diseases; Nutritional and metabolic diseases
DFS-SF: Diabetic Foot Ulcer Scale – Short Form
Janssen Global Services, LLC (USA); Mapi
Skin and connective tissue diseases; Endocrine system diseases; Nutritional and metabolic diseases
DN4: Neuropathic Pain 4 Questions
Bouhassira Didier
Nervous system diseases; Pathological conditions signs and symptoms
DPM: Diabetes Productivity Measure
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
DSM: Diabetes Symptom Measure
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
DiabMedSat: Diabetes Medication Satisfaction
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
ESS: Epworth Sleepiness Scale
Johns Murray W, MB, BS, BSc, PhD
Nervous system diseases; Pathological conditions signs and symptoms
FACE-Q: FACE-Q
Klassen Anne F; Cano Stefan; Pusic Andrea L
Psychiatry/Psychology
FBA: Food Benefits Assessment
Danone (France); Mapi
Generic
FBDSI: Functional Bowel Disorder Severity Index
Drossman Douglas; Li Zhiming; Toner Brenda B; et al.
Digestive system diseases
FIQ: Fibromyalgia Impact Questionnaire
Bennett Robert; Burckhardt Carol; Clark Sharon
Musculoskeletal diseases; Nervous system diseases
FIQR: Revised Fibromyalgia Impact Questionnaire
Bennett Robert; Friend Ronald
Musculoskeletal diseases; Nervous system diseases
FIS: Fatigue Impact Scale
Fisk John D
Pathological conditions signs and symptoms
FRI Index: Functional Reading Independence Index
Genentech, Inc.
Eye diseases
FiRST: Fibromyalgia Rapid Screening Tool
Perrot Serge; Bouhassira Didier
Musculoskeletal diseases; Nervous system diseases
GCSI: Gastroparesis Cardinal Symptom Index
Janssen Global Services, LLC (USA)
Digestive system diseases; Pathological conditions signs and symptoms
GHQ: General Health Questionnaire
Goldberg David
Psychiatry/Psychology
GSAS: Gastroesophageal Reflux Disease Symptom Assessment Scale
Janssen Global Services, LLC (USA)
Digestive system diseases
GlauQOL: Glaucoma Quality of Life Questionnaire
Bausch & Lomb Chauvin (France); Mapi
Eye diseases
HADS: Hospital Anxiety and Depression Scale
Snaith RP; Zigmond AS
Psychiatry/Psychology
HAQ: Health Assessment Questionnaire
Fries James F
Musculoskeletal diseases; Generic
I-PSS: International Prostate Symptom Score
Barry Michael J
Male genital diseases
IBHQ ©: Impact of Bronchiolitis Hospitalisation Questionnaire
Abbott (France)
Respiratory tract diseases
IBS-QOL: Irritable Bowel Syndrome – Quality Of Life
Patrick Donald L; Drossman Douglas; Novartis Pharmaceuticals Corporation
Digestive system diseases
IBS-SSS: IBS Symptom Severity Scale
Francis CY; Morris J; Whorwell PJ
Digestive system diseases
INQoL©: Individualized Neuromuscular Quality of Life Questionnaire
Carr Alison J; Rose Michael R; Vincent Kelly A
Musculoskeletal diseases; Nervous system diseases
IRLS: International Restless Legs Syndrome Study Group Rating Scale
Allen Richard P; Walters Arthur S
Nervous system diseases; Psychiatry/Psychology
ISI: Insomnia Severity Index Questionnaire
Morin Charles M
Nervous system diseases; Pathological conditions signs and symptoms
ISL: Index of Sexual Life
Pfizer (France); Mapi
Female genital diseases and pregnancy complications; Male genital diseases; Psychiatry/Psychology
ITSQ: Insulin Treatment Satisfaction Questionnaire
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
KHQ: King’s Health Questionnaire
Cardozo Linda; Kelleher Con J
Pathological conditions signs and symptoms; Urologic diseases
MAF: Multidimensional Assessment of Fatigue
Belza Basia L
Pathological conditions signs and symptoms
MedTech20© / MedTech20 Questionnaire
NHE Licence AB (Sweden)
Generic
MENQOL: Menopause-specific Quality of Life Questionnaire
Lewis Jacqueline E; Hilditch John R
Female genital diseases and pregnancy complications
MFSQ: McCoy Female Sexuality Questionnaire
McCoy Norma L
Female genital diseases and pregnancy complications
MOS-HIV: Medical Outcome Study-HIV Health Survey
Wu Albert W, MD, MPH
Immune system diseases; Virus diseases
MSHQ: Male Sexual Health Questionnaire
Rosen Raymond C; Sanofi Aventis
Urologic diseases; Male genital diseases; Psychiatry/Psychology
MiniAQLQ: Mini Asthma Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases
MusiQoL: Multiple Sclerosis International Quality of Life questionnaire
Auquier Pascal; Simeoni Marie-Claude; Baumstarck Karine
Immune system diseases; Nervous system diseases
NEMOQC©: New Mother Quality of Care questionnaire©
Besker-Ivasovic Ljubica, MD, PhD
Female genital diseases and pregnancy complications
NPI: Neuropsychiatric Inventory
Cummings, MD Jeffrey L
Nervous system diseases; Psychiatry/Psychology
NPS: Neuropathic Pain Scale
Galer Bradley S; Jensen Mark P
Nervous system diseases; Pathological conditions signs and symptoms
NPSI: Neuropathic Pain Symptom Inventory
Bouhassira Didier
Nervous system diseases; Pathological conditions signs and symptoms
NQ: Nausea Questionnaire
Melzack Ronald
Pathological conditions signs and symptoms
NRQLQ: Nocturnal Rhinoconjunctivitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases
ODEON: Objectif Douleur En Ophtalmologie et Neuro-ophtalmologie
Bausch & Lomb Chauvin (France); Mapi
Eye diseases
ODI: Oswestry Disability Index
Fairbank Jeremy
Disorders of environmental origin; Nervous system diseases; Pathological conditions signs and symptoms
ONYCHO: Onychomycosis Quality of Life Questionnaire
Janssen Global Services, LLC (USA); Bacterial infections and mycoses
Skin and connective tissue diseases
OSD®: Ocular Surface Disease Questionnaire
Bausch & Lomb Chauvin (France); Mapi
Eye diseases
P-RLS-SS: Pediatric Restless Legs Syndrome Severity Scale®
Boehringer Ingelheim Pharma (Germany); Mapi
Nervous system diseases; Psychiatry/Psychology
PAC-QOL: Patient Assessment of Constipation Quality of Life Questionnaire
Janssen Global Services, LLC (USA); Mapi
Pathological conditions signs and symptoms
PAC-SYM: Patient Assessment of Constipation Symptoms
Janssen Global Services, LLC (USA)
Pathological conditions signs and symptoms
PACD: Pediatric Asthma Caregiver Diary
Merck Sharp & Dohme Corp. (USA)
Immune system diseases; Respiratory tract diseases
PACT-Q: Perception of Anticoagulant Treatment Questionnaire
Sanofi Aventis; Mapi
Cardiovascular diseases; Respiratory tract diseases; Pathological conditions signs and symptoms
PAGI-QOL: Patient Assessment of Upper Gastrointestinal Disorders-Quality of Life
Janssen Global Services, LLC (USA); Mapi
Digestive system diseases; Pathological conditions signs and symptoms
PAGI-SYM: Patient Assessment of Gastrointestinal Disorders Symptom Severity Index
Janssen Global Services, LLC (USA)
Digestive system diseases; Pathological conditions signs and symptoms
PAR-ENT-QoL: Parents Questionnaire: The effects of Rhinopharyngitis and/or otitis of the child upon family life
Mapi; Pierre Fabre Medicament
Otorhinolaryngologic diseases; Respiratory tract diseases; Stomatognathic diseases
PDSS-2: Parkinson’s Disease Sleep Scale 2
Chaudhuri K Ray; Trenkwalder Claudia; Kohnen Ralf
Nervous system diseases
PEESS v2.0: Pediatric Eosinophilic Esophagitis Symptom Severity Module, version 2.0
Franciosi James P
Digestive system diseases; Hemic and lymphatic diseases; Immune system diseases
PGWBI: Psychological General Well-Being Index
Dupuy Harold J
Generic
PI-ED: Paediatric Index of Emotional Distress
GL Assessment Ltd
Generic
PKU-QOL: Phenylketonuria impact and treatment Quality Of Life Questionnaire
Mapi; Merck Serono
Congenital, hereditary, and neonatal diseases and abnormalities; Nervous system diseases; Nutritional and metabolic diseases
PQAS and PQAS-R: Pain Quality Assessment Scale and Revised Pain Quality Assessment Scale
Galer Bradley S; Gammaitoni Arnold R; Jensen Mark P
Nervous system diseases; Pathological conditions signs and symptoms
PRAC-Test: PRAgmatic Content and face validity Test
Mapi Values
Generic
PSQI: Pittsburgh Sleep Quality Index
Buysse Daniel J; Berman Susan R; Kupfer David J; et al.
Nervous system diseases; Pathological conditions signs and symptoms
QBPDS: Quebec Back Pain Disability Scale
Kopec Jacek; Abenhaim Lucien; Abrahamowicz Michal; et al.
Nervous system diseases; Pathological conditions signs and symptoms
QUAL HEMO: Haemophilia age group-specific Quality of life Questionnaire
Baxter; Mapi; QUAL HEMO scientific committee
Congenital, hereditary, and neonatal diseases and abnormalities; Hemic and lymphatic diseases
QUALIOST®: QUAlity of Life questionnaire In OSTeoporosis
Servier (France); Mapi
Musculoskeletal diseases
QUALIVEEN-30: QUALIVEEN 30 items
Bonniaud Véronique
Urologic diseases; Nervous system diseases
REFLETS: REFlective evaLuation of psoriasis Efficacy of Treatment and Severity
Abbvie (France); Mapi
Skin and connective tissue diseases
RFIPC: Rating Form of IBD Patient Concerns
Drossman Douglas
Digestive system diseases
RLS-QoL or Hopkins RLS QoL: Restless Legs Quality of Life Scale or Hopkins RLS Quality of Life Scale
Allen Richard P
Nervous system diseases; Psychiatry/Psychology
Reflux-Qual: Quality of Life Questionnaire in Gastroesophageal Reflux
Laboratoires Aventis; Amouretti Michel; Galmiche Jean-Pierre; et al.
Digestive system diseases
RhinQLQ: Rhinitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases
SAC BDI-TDI: Self-administered Computerized version of the BDI-TDI
Psychological Applications LLC
Respiratory tract diseases; Congenital, hereditary, and neonatal diseases and abnormalities; Digestive system diseases; Immune system diseases
SAT-37: Satisfaction with Care Scale
Dorn Spencer; Drossman Douglas
Digestive system diseases
SATMED-Q: Treatment Satisfaction with Medicines Questionnaire
Ruiz Miguel A, PhD; Pardo Antonio, PhD; Rejas Javier, MD; et al.
Generic
SF-MPQ: McGill Pain Questionnaire Short Form
Melzack Ronald
Nervous system diseases; Pathological conditions signs and symptoms
SF-MPQ-2: Short-form McGill Pain Questionnaire
Melzack Ronald; IMMPACT Group
Nervous system diseases; Pathological conditions signs and symptoms
SF-QUALIVEEN: QUALIVEEN Short Form
Bonniaud Véronique; Bryant Dianne; Guyatt G; et al.
Urologic diseases; Nervous system diseases
SFI: Sexual Function Index
Merck & Co., Inc. (USA); O’Leary Michael
Male genital diseases; Psychiatry/Psychology
SHIP: Studying the Hurdles of Insulin Prescription
Pfizer (France); Mapi
Endocrine system diseases; Nutritional and metabolic diseases
SIP: Sickness Impact Profile
Bergner Marilyn; Gilson Betty
Generic
SIQR: Revised Symptom Impact Questionnaire
Bennett Robert; Friend Ronald
Generic
SIS: Stroke Impact Scale & Stroke Toolbox
Duncan Pamela W; Lai Sue M; Studenski Stephanie
Cardiovascular diseases; Nervous system diseases
SPACE-Q: Satisfaction of PAtients with Crohn’s disease
Abbott (France); Mapi
Digestive system diseases
SQLI: Stoma Quality of Life Index
ConvaTec
Surgical Procedures, Operative
Skindex / Skindex-29 / Skindex-16: SkIndex
Chren Mary-Margaret, MD
Skin and connective tissue diseases
Skindex-Teen: Skindex-Teen
Smidt Aimee C.
Skin and connective tissue diseases
TBQ: Burden of Treatment Questionnaire
Ravaud Philippe; Tran Viet-Thi
Generic
TRIM-D and TRIM-D Device: Treatment Related Impact Measure for Diabetes
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
TranQol: Transfusion-dependent QoL Questionnaire
Klaassen Robert J; Kirby Allen Melanie; Young Nancy L
Hemic and lymphatic diseases
Trauma Questionnaire: Trauma Questionnaire
Drossman Douglas; Leserman Jane
Generic
UROLIFE / BPHQoL9: Benign Prostatic Hypertrophy Health-Related Quality of Life Questionnaire
Lukacs Bertrand; Sanofi Aventis
Urologic diseases; Male genital diseases
USP: Urinary Symptom Profile
French Association of Urology (France); Mapi
Pathological conditions signs and symptoms; Urologic diseases
VAPI: Vaccinees’ Perception of Injection
Sanofi Pasteur (France); Mapi
Respiratory tract diseases; Virus diseases
WHQ: Women’s Health Questionnaire
Hunter Myra
Female genital diseases and pregnancy complications
ZBI: Zarit Burden Interview
Zarit Steven H
Nervous system diseases; Psychiatry/Psychology
