Questionnaires Distributed By The Mapi Research Trust
Below is the list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. If you have any questions on these instruments, please contact our team by ePROVIDETM request management
PedsQL: Pediatric Quality of Life Inventory
Varni James W
Generic
AAIQOL: Activity and Affect Indicators of QOL
Albert Steven M, PhD, MSPH
Nervous system diseases; Psychiatry/Psychology
ACCEPT: Chronic Treatment Acceptance Questionnaire
Mapi
Generic
ACQ: Asthma Control Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases
ACTS: Anti-Clot Treatment Scale
Cano Stefan; Lamping Donna L
Cardiovascular diseases; Respiratory tract diseases
ADCPQ: Alzheimer’s Disease Caregiver Preference Questionnaire
Novartis Pharmaceuticals Corporation; Mapi
Nervous system diseases; Psychiatry/Psychology
ADRQL: Alzheimer’s Disease-Related Quality of Life
Black Betty S; Kasper Judith D; Rabins Peter V
Nervous system diseases; Psychiatry/Psychology
AQLQ: Asthma Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases
ARTS: OsteoARthritis Treatment Satisfaction Questionnaire
Pfizer (France); Mapi
Musculoskeletal diseases
ASRS: Augmentation Severity Rating Scale
The European Restless Legs Syndrome Study Group (EURLSSG)
Nervous system diseases; Psychiatry/Psychology
AUQUEI: Pictured Child’s Quality of Life Self Questionnaire
Dazord Alice; Manificat Sabine
Generic
AdolRQLQ: Adolescent Rhinoconjunctivitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases
BASDAI: Bath Ankylosing Spondylitis Disease Activity Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases
BASFI: Bath Ankylosing Spondylitis Functional Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases
BASMI: Bath Ankylosing Spondylitis Metrology Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases
BDI-TDI: Baseline and Transition Dyspnea Indexes
Mahler Donald A
Respiratory tract diseases; Congenital, hereditary, and neonatal diseases and abnormalities; Digestive system diseases; Immune system diseases
BI: Barthel Index
Mahoney Florence I; Barthel Dorothea W
Generic
BREAST-Q: BREAST-Q
Pusic Andrea L; Cano Stefan; Klassen Anne F
Surgical Procedures, Operative
CASC: Comprehensive Assessment of Satisfaction with Care
Bredart Anne
Neoplasms
CCQ: Clinical COPD Questionnaire
van der Molen Thys
Respiratory tract diseases
CD-QOL: Celiac Disease Quality of Life Measure
Drossman Douglas; Dorn Spencer
Digestive system diseases; Nutritional and metabolic diseases
CECA: Cuestionario Específico en Condilomas Acuminados
Badia Xavier
Skin and connective tissue diseases; Virus diseases
CHES-Q: Current Health Satisfaction Questionnaire
Janssen Global Services, LLC (USA)
Endocrine system diseases; Nutritional and metabolic diseases
CQLQ©: Cough Quality of Life Questionnaire
Irwin Richard S., MD; Fletcher Kenneth E.; French Cynthia T.
Pathological conditions signs and symptoms; Respiratory tract diseases
Contilife®: Quality of Life Assessment Questionnaire Concerning Urinary Incontinence
Sanofi Aventis; Mapi
Pathological conditions signs and symptoms; Urologic diseases
D-FIS: Daily Fatigue Impact Scale
Fisk John D
Pathological conditions signs and symptoms
DFS: Diabetic Foot Ulcer Scale
Janssen Global Services, LLC (USA); Mapi
Skin and connective tissue diseases; Endocrine system diseases; Nutritional and metabolic diseases
DFS-SF: Diabetic Foot Ulcer Scale – Short Form
Janssen Global Services, LLC (USA); Mapi
Skin and connective tissue diseases; Endocrine system diseases; Nutritional and metabolic diseases
DN4: Neuropathic Pain 4 Questions
Bouhassira Didier
Nervous system diseases; Pathological conditions signs and symptoms
DPM: Diabetes Productivity Measure
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
DSM: Diabetes Symptom Measure
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
DiabMedSat: Diabetes Medication Satisfaction
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
ESS: Epworth Sleepiness Scale
Johns Murray W, MB, BS, BSc, PhD
Nervous system diseases; Pathological conditions signs and symptoms
FACE-Q: FACE-Q
Klassen Anne F; Cano Stefan; Pusic Andrea L
Psychiatry/Psychology
FBA: Food Benefits Assessment
Danone (France); Mapi
Generic
FBDSI: Functional Bowel Disorder Severity Index
Drossman Douglas; Li Zhiming; Toner Brenda B; et al.
Digestive system diseases
FIQ: Fibromyalgia Impact Questionnaire
Bennett Robert; Burckhardt Carol; Clark Sharon
Musculoskeletal diseases; Nervous system diseases
FIQR: Revised Fibromyalgia Impact Questionnaire
Bennett Robert; Friend Ronald
Musculoskeletal diseases; Nervous system diseases
FIS: Fatigue Impact Scale
Fisk John D
Pathological conditions signs and symptoms
FRI Index: Functional Reading Independence Index
Genentech, Inc.
Eye diseases
FiRST: Fibromyalgia Rapid Screening Tool
Perrot Serge; Bouhassira Didier
Musculoskeletal diseases; Nervous system diseases
GCSI: Gastroparesis Cardinal Symptom Index
Janssen Global Services, LLC (USA)
Digestive system diseases; Pathological conditions signs and symptoms
GHQ: General Health Questionnaire
Goldberg David
Psychiatry/Psychology
GSAS: Gastroesophageal Reflux Disease Symptom Assessment Scale
Janssen Global Services, LLC (USA)
Digestive system diseases
GlauQOL: Glaucoma Quality of Life Questionnaire
Bausch & Lomb Chauvin (France); Mapi
Eye diseases
HADS: Hospital Anxiety and Depression Scale
Snaith RP; Zigmond AS
Psychiatry/Psychology
HAQ: Health Assessment Questionnaire
Fries James F
Musculoskeletal diseases; Generic
I-PSS: International Prostate Symptom Score
Barry Michael J
Male genital diseases
IBHQ ©: Impact of Bronchiolitis Hospitalisation Questionnaire
Abbott (France)
Respiratory tract diseases
IBS-QOL: Irritable Bowel Syndrome – Quality Of Life
Patrick Donald L; Drossman Douglas; Novartis Pharmaceuticals Corporation
Digestive system diseases
IBS-SSS: IBS Symptom Severity Scale
Francis CY; Morris J; Whorwell PJ
Digestive system diseases
INQoL©: Individualized Neuromuscular Quality of Life Questionnaire
Carr Alison J; Rose Michael R; Vincent Kelly A
Musculoskeletal diseases; Nervous system diseases
IRLS: International Restless Legs Syndrome Study Group Rating Scale
Allen Richard P; Walters Arthur S
Nervous system diseases; Psychiatry/Psychology
ISI: Insomnia Severity Index Questionnaire
Morin Charles M
Nervous system diseases; Pathological conditions signs and symptoms
ISL: Index of Sexual Life
Pfizer (France); Mapi
Female genital diseases and pregnancy complications; Male genital diseases; Psychiatry/Psychology
ITSQ: Insulin Treatment Satisfaction Questionnaire
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
KHQ: King’s Health Questionnaire
Cardozo Linda; Kelleher Con J
Pathological conditions signs and symptoms; Urologic diseases
MAF: Multidimensional Assessment of Fatigue
Belza Basia L
Pathological conditions signs and symptoms
MedTech20© / MedTech20 Questionnaire
NHE Licence AB (Sweden)
Generic
MENQOL: Menopause-specific Quality of Life Questionnaire
Lewis Jacqueline E; Hilditch John R
Female genital diseases and pregnancy complications
MFSQ: McCoy Female Sexuality Questionnaire
McCoy Norma L
Female genital diseases and pregnancy complications
MOS-HIV: Medical Outcome Study-HIV Health Survey
Wu Albert W, MD, MPH
Immune system diseases; Virus diseases
MSHQ: Male Sexual Health Questionnaire
Rosen Raymond C; Sanofi Aventis
Urologic diseases; Male genital diseases; Psychiatry/Psychology
MiniAQLQ: Mini Asthma Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases
MusiQoL: Multiple Sclerosis International Quality of Life questionnaire
Auquier Pascal; Simeoni Marie-Claude; Baumstarck Karine
Immune system diseases; Nervous system diseases
NEMOQC©: New Mother Quality of Care questionnaire©
Besker-Ivasovic Ljubica, MD, PhD
Female genital diseases and pregnancy complications
NPI: Neuropsychiatric Inventory
Cummings, MD Jeffrey L
Nervous system diseases; Psychiatry/Psychology
NPS: Neuropathic Pain Scale
Galer Bradley S; Jensen Mark P
Nervous system diseases; Pathological conditions signs and symptoms
NPSI: Neuropathic Pain Symptom Inventory
Bouhassira Didier
Nervous system diseases; Pathological conditions signs and symptoms
NQ: Nausea Questionnaire
Melzack Ronald
Pathological conditions signs and symptoms
NRQLQ: Nocturnal Rhinoconjunctivitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases
ODEON: Objectif Douleur En Ophtalmologie et Neuro-ophtalmologie
Bausch & Lomb Chauvin (France); Mapi
Eye diseases
ODI: Oswestry Disability Index
Fairbank Jeremy
Disorders of environmental origin; Nervous system diseases; Pathological conditions signs and symptoms
ONYCHO: Onychomycosis Quality of Life Questionnaire
Janssen Global Services, LLC (USA); Bacterial infections and mycoses
Skin and connective tissue diseases
OSD®: Ocular Surface Disease Questionnaire
Bausch & Lomb Chauvin (France); Mapi
Eye diseases
P-RLS-SS: Pediatric Restless Legs Syndrome Severity Scale®
Boehringer Ingelheim Pharma (Germany); Mapi
Nervous system diseases; Psychiatry/Psychology
PAC-QOL: Patient Assessment of Constipation Quality of Life Questionnaire
Janssen Global Services, LLC (USA); Mapi
Pathological conditions signs and symptoms
PAC-SYM: Patient Assessment of Constipation Symptoms
Janssen Global Services, LLC (USA)
Pathological conditions signs and symptoms
PACD: Pediatric Asthma Caregiver Diary
Merck Sharp & Dohme Corp. (USA)
Immune system diseases; Respiratory tract diseases
PACT-Q: Perception of Anticoagulant Treatment Questionnaire
Sanofi Aventis; Mapi
Cardiovascular diseases; Respiratory tract diseases; Pathological conditions signs and symptoms
PAGI-QOL: Patient Assessment of Upper Gastrointestinal Disorders-Quality of Life
Janssen Global Services, LLC (USA); Mapi
Digestive system diseases; Pathological conditions signs and symptoms
PAGI-SYM: Patient Assessment of Gastrointestinal Disorders Symptom Severity Index
Janssen Global Services, LLC (USA)
Digestive system diseases; Pathological conditions signs and symptoms
PAR-ENT-QoL: Parents Questionnaire: The effects of Rhinopharyngitis and/or otitis of the child upon family life
Mapi; Pierre Fabre Medicament
Otorhinolaryngologic diseases; Respiratory tract diseases; Stomatognathic diseases
PDSS-2: Parkinson’s Disease Sleep Scale 2
Chaudhuri K Ray; Trenkwalder Claudia; Kohnen Ralf
Nervous system diseases
PEESS v2.0: Pediatric Eosinophilic Esophagitis Symptom Severity Module, version 2.0
Franciosi James P
Digestive system diseases; Hemic and lymphatic diseases; Immune system diseases
PGWBI: Psychological General Well-Being Index
Dupuy Harold J
Generic
PI-ED: Paediatric Index of Emotional Distress
GL Assessment Ltd
Generic
PKU-QOL: Phenylketonuria impact and treatment Quality Of Life Questionnaire
Mapi; Merck Serono
Congenital, hereditary, and neonatal diseases and abnormalities; Nervous system diseases; Nutritional and metabolic diseases
PQAS and PQAS-R: Pain Quality Assessment Scale and Revised Pain Quality Assessment Scale
Galer Bradley S; Gammaitoni Arnold R; Jensen Mark P
Nervous system diseases; Pathological conditions signs and symptoms
PRAC-Test: PRAgmatic Content and face validity Test
Mapi Values
Generic
PSQI: Pittsburgh Sleep Quality Index
Buysse Daniel J; Berman Susan R; Kupfer David J; et al.
Nervous system diseases; Pathological conditions signs and symptoms
QBPDS: Quebec Back Pain Disability Scale
Kopec Jacek; Abenhaim Lucien; Abrahamowicz Michal; et al.
Nervous system diseases; Pathological conditions signs and symptoms
QUAL HEMO: Haemophilia age group-specific Quality of life Questionnaire
Baxter; Mapi; QUAL HEMO scientific committee
Congenital, hereditary, and neonatal diseases and abnormalities; Hemic and lymphatic diseases
QUALIOST®: QUAlity of Life questionnaire In OSTeoporosis
Servier (France); Mapi
Musculoskeletal diseases
QUALIVEEN-30: QUALIVEEN 30 items
Bonniaud Véronique
Urologic diseases; Nervous system diseases
REFLETS: REFlective evaLuation of psoriasis Efficacy of Treatment and Severity
Abbvie (France); Mapi
Skin and connective tissue diseases
RFIPC: Rating Form of IBD Patient Concerns
Drossman Douglas
Digestive system diseases
RLS-QoL or Hopkins RLS QoL: Restless Legs Quality of Life Scale or Hopkins RLS Quality of Life Scale
Allen Richard P
Nervous system diseases; Psychiatry/Psychology
Reflux-Qual: Quality of Life Questionnaire in Gastroesophageal Reflux
Laboratoires Aventis; Amouretti Michel; Galmiche Jean-Pierre; et al.
Digestive system diseases
RhinQLQ: Rhinitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases
SAC BDI-TDI: Self-administered Computerized version of the BDI-TDI
Psychological Applications LLC
Respiratory tract diseases; Congenital, hereditary, and neonatal diseases and abnormalities; Digestive system diseases; Immune system diseases
SAT-37: Satisfaction with Care Scale
Dorn Spencer; Drossman Douglas
Digestive system diseases
SATMED-Q: Treatment Satisfaction with Medicines Questionnaire
Ruiz Miguel A, PhD; Pardo Antonio, PhD; Rejas Javier, MD; et al.
Generic
SF-MPQ: McGill Pain Questionnaire Short Form
Melzack Ronald
Nervous system diseases; Pathological conditions signs and symptoms
SF-MPQ-2: Short-form McGill Pain Questionnaire
Melzack Ronald; IMMPACT Group
Nervous system diseases; Pathological conditions signs and symptoms
SF-QUALIVEEN: QUALIVEEN Short Form
Bonniaud Véronique; Bryant Dianne; Guyatt G; et al.
Urologic diseases; Nervous system diseases
SFI: Sexual Function Index
Merck & Co., Inc. (USA); O’Leary Michael
Male genital diseases; Psychiatry/Psychology
SHIP: Studying the Hurdles of Insulin Prescription
Pfizer (France); Mapi
Endocrine system diseases; Nutritional and metabolic diseases
SIP: Sickness Impact Profile
Bergner Marilyn; Gilson Betty
Generic
SIQR: Revised Symptom Impact Questionnaire
Bennett Robert; Friend Ronald
Generic
SIS: Stroke Impact Scale & Stroke Toolbox
Duncan Pamela W; Lai Sue M; Studenski Stephanie
Cardiovascular diseases; Nervous system diseases
SPACE-Q: Satisfaction of PAtients with Crohn’s disease
Abbott (France); Mapi
Digestive system diseases
SQLI: Stoma Quality of Life Index
ConvaTec
Surgical Procedures, Operative
Skindex / Skindex-29 / Skindex-16: SkIndex
Chren Mary-Margaret, MD
Skin and connective tissue diseases
Skindex-Teen: Skindex-Teen
Smidt Aimee C.
Skin and connective tissue diseases
TBQ: Burden of Treatment Questionnaire
Ravaud Philippe; Tran Viet-Thi
Generic
TRIM-D and TRIM-D Device: Treatment Related Impact Measure for Diabetes
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases
TranQol: Transfusion-dependent QoL Questionnaire
Klaassen Robert J; Kirby Allen Melanie; Young Nancy L
Hemic and lymphatic diseases
Trauma Questionnaire: Trauma Questionnaire
Drossman Douglas; Leserman Jane
Generic
UROLIFE / BPHQoL9: Benign Prostatic Hypertrophy Health-Related Quality of Life Questionnaire
Lukacs Bertrand; Sanofi Aventis
Urologic diseases; Male genital diseases
USP: Urinary Symptom Profile
French Association of Urology (France); Mapi
Pathological conditions signs and symptoms; Urologic diseases
VAPI: Vaccinees’ Perception of Injection
Sanofi Pasteur (France); Mapi
Respiratory tract diseases; Virus diseases
WHQ: Women’s Health Questionnaire
Hunter Myra
Female genital diseases and pregnancy complications
ZBI: Zarit Burden Interview
Zarit Steven H
Nervous system diseases; Psychiatry/Psychology
