The non-exhaustive list below will help you find other sites of potential interest.

Learned Societies:

Australian Health Outcomes Collaboration
www.health.act.gov.au

CDC HRQOL Website (centers for Disease Control and Prevention)
www.cdc.gov/hrqol/index.htm

Cochrane Colaboration
www.cochrane.org

ENCePP (European Network Centres for Pharmacoepidemiology and Pharmacovigilance)
www.encepp.eu

Mapi Research Trust is a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies, a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.

ISOQOL (International Society for Quality of Life Research)
www.isoqol.org

ISPE (International Society for Pharmaceutical Engineering)
www.ispe.org

ISPOR (International Society for Pharmacoeconomics and Outcomes Research)
www.ispor.org

National Institutes of Health (NIH)
www.nih.gov

Questionnaires:

C-SSRS (Center for Suicide Risk Assessment)
www.cssrs.columbia.edu

EORTC Quality of Life Unit
https://qol.eortc.org/

EuroQol
www.euroqol.org

FACIT (Functional Assessment of Chronic Illness Therapy)
www.facit.org

HealthACTCHQ (HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families. )
www.healthactchq.com

IQOLA (International Quality of Life Assessment)
www.iqola.org

Measurement of Health-Related Quality of Life & Asthma Control
www.qoltech.co.uk

PedsQL™ (Measurement Model for the Pediatric Quality Inventory™)
www.pedsql.org

RAND
www.rand.org

Rehabilitation Measures Database
www.rehabmeasures.org

 

Health Authorities:

EMA (European Medicines Agency)
www.ema.europa.eu

FDA (U.S. Food and Drug Administration)
www.fda.gov

Mapi Websites:

ERIQA (European Regulatory Issues on Quality of Life Assessment Group)
www.eriqa-project.com

PRO Harmonization Group
www.eriqa-project.com/pro-harmo/home.html

PROLABELS database (Patient-Reported Outcomes & drug market authorizations)
https://eprovide.mapi-trust.org

PROQOLID database (Patient-Reported Outcome and Quality of Life Instruments Database)
https://eprovide.mapi-trust.org

Other:

World Health Organization (WHO)
www.who.int