Questionnaires Distributed By The Mapi Research Trust

Below is the list of instruments distributed by Mapi Research Trust on behalf of their copyright owners. If you have any questions on these instruments, please contact our team by ePROVIDETM request management

PedsQL: Pediatric Quality of Life Inventory
Varni James W
Generic

AAIQOL: Activity and Affect Indicators of QOL
Albert Steven M, PhD, MSPH
Nervous system diseases; Psychiatry/Psychology

ACCEPT: Chronic Treatment Acceptance Questionnaire
Mapi
Generic

ACQ: Asthma Control Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases

ACTS: Anti-Clot Treatment Scale
Cano Stefan; Lamping Donna L
Cardiovascular diseases; Respiratory tract diseases

ADCPQ: Alzheimer’s Disease Caregiver Preference Questionnaire
Novartis Pharmaceuticals Corporation; Mapi
Nervous system diseases; Psychiatry/Psychology

ADRQL: Alzheimer’s Disease-Related Quality of Life
Black Betty S; Kasper Judith D; Rabins Peter V
Nervous system diseases; Psychiatry/Psychology

AQLQ: Asthma Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases

ARTS: OsteoARthritis Treatment Satisfaction Questionnaire
Pfizer (France); Mapi
Musculoskeletal diseases

ASRS: Augmentation Severity Rating Scale
The European Restless Legs Syndrome Study Group (EURLSSG)
Nervous system diseases; Psychiatry/Psychology

AUQUEI: Pictured Child’s Quality of Life Self Questionnaire
Dazord Alice; Manificat Sabine
Generic

AdolRQLQ: Adolescent Rhinoconjunctivitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases

BASDAI: Bath Ankylosing Spondylitis Disease Activity Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases

BASFI: Bath Ankylosing Spondylitis Functional Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases

BASMI: Bath Ankylosing Spondylitis Metrology Index
Calin Andrei
Immune system diseases; Musculoskeletal diseases; Skin and connective tissue diseases

BDI-TDI: Baseline and Transition Dyspnea Indexes
Mahler Donald A
Respiratory tract diseases; Congenital, hereditary, and neonatal diseases and abnormalities; Digestive system diseases; Immune system diseases

BI: Barthel Index
Mahoney Florence I; Barthel Dorothea W
Generic

BREAST-Q: BREAST-Q
Pusic Andrea L; Cano Stefan; Klassen Anne F
Surgical Procedures, Operative

CASC: Comprehensive Assessment of Satisfaction with Care
Bredart Anne
Neoplasms

CCQ: Clinical COPD Questionnaire
van der Molen Thys
Respiratory tract diseases

CD-QOL: Celiac Disease Quality of Life Measure
Drossman Douglas; Dorn Spencer
Digestive system diseases; Nutritional and metabolic diseases

CECA: Cuestionario Específico en Condilomas Acuminados
Badia Xavier
Skin and connective tissue diseases; Virus diseases

CHES-Q: Current Health Satisfaction Questionnaire
Janssen Global Services, LLC (USA)
Endocrine system diseases; Nutritional and metabolic diseases

CQLQ©: Cough Quality of Life Questionnaire
Irwin Richard S., MD; Fletcher Kenneth E.; French Cynthia T.
Pathological conditions signs and symptoms; Respiratory tract diseases

Contilife®: Quality of Life Assessment Questionnaire Concerning Urinary Incontinence
Sanofi Aventis; Mapi
Pathological conditions signs and symptoms; Urologic diseases

D-FIS: Daily Fatigue Impact Scale
Fisk John D
Pathological conditions signs and symptoms

DFS: Diabetic Foot Ulcer Scale
Janssen Global Services, LLC (USA); Mapi
Skin and connective tissue diseases; Endocrine system diseases; Nutritional and metabolic diseases

DFS-SF: Diabetic Foot Ulcer Scale – Short Form
Janssen Global Services, LLC (USA); Mapi
Skin and connective tissue diseases; Endocrine system diseases; Nutritional and metabolic diseases

DN4: Neuropathic Pain 4 Questions
Bouhassira Didier
Nervous system diseases; Pathological conditions signs and symptoms

DPM: Diabetes Productivity Measure
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases

DSM: Diabetes Symptom Measure
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases

DiabMedSat: Diabetes Medication Satisfaction
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases

ESS: Epworth Sleepiness Scale
Johns Murray W, MB, BS, BSc, PhD
Nervous system diseases; Pathological conditions signs and symptoms

FACE-Q: FACE-Q
Klassen Anne F; Cano Stefan; Pusic Andrea L
Psychiatry/Psychology

FBA: Food Benefits Assessment
Danone (France); Mapi
Generic

FBDSI: Functional Bowel Disorder Severity Index
Drossman Douglas; Li Zhiming; Toner Brenda B; et al.
Digestive system diseases

FIQ: Fibromyalgia Impact Questionnaire
Bennett Robert; Burckhardt Carol; Clark Sharon
Musculoskeletal diseases; Nervous system diseases

FIQR: Revised Fibromyalgia Impact Questionnaire
Bennett Robert; Friend Ronald
Musculoskeletal diseases; Nervous system diseases

FIS: Fatigue Impact Scale
Fisk John D
Pathological conditions signs and symptoms

FRI Index: Functional Reading Independence Index
Genentech, Inc.
Eye diseases

FiRST: Fibromyalgia Rapid Screening Tool
Perrot Serge; Bouhassira Didier
Musculoskeletal diseases; Nervous system diseases

GCSI: Gastroparesis Cardinal Symptom Index
Janssen Global Services, LLC (USA)
Digestive system diseases; Pathological conditions signs and symptoms

GHQ: General Health Questionnaire
Goldberg David
Psychiatry/Psychology

GSAS: Gastroesophageal Reflux Disease Symptom Assessment Scale
Janssen Global Services, LLC (USA)
Digestive system diseases

GlauQOL: Glaucoma Quality of Life Questionnaire
Bausch & Lomb Chauvin (France); Mapi
Eye diseases

HADS: Hospital Anxiety and Depression Scale
Snaith RP; Zigmond AS
Psychiatry/Psychology

HAQ: Health Assessment Questionnaire
Fries James F
Musculoskeletal diseases; Generic

I-PSS: International Prostate Symptom Score
Barry Michael J
Male genital diseases

IBHQ ©: Impact of Bronchiolitis Hospitalisation Questionnaire
Abbott (France)
Respiratory tract diseases

IBS-QOL: Irritable Bowel Syndrome – Quality Of Life
Patrick Donald L; Drossman Douglas; Novartis Pharmaceuticals Corporation
Digestive system diseases

IBS-SSS: IBS Symptom Severity Scale
Francis CY; Morris J; Whorwell PJ
Digestive system diseases

INQoL©: Individualized Neuromuscular Quality of Life Questionnaire
Carr Alison J; Rose Michael R; Vincent Kelly A
Musculoskeletal diseases; Nervous system diseases

IRLS: International Restless Legs Syndrome Study Group Rating Scale
Allen Richard P; Walters Arthur S
Nervous system diseases; Psychiatry/Psychology

ISI: Insomnia Severity Index Questionnaire
Morin Charles M
Nervous system diseases; Pathological conditions signs and symptoms

ISL: Index of Sexual Life
Pfizer (France); Mapi
Female genital diseases and pregnancy complications; Male genital diseases; Psychiatry/Psychology

ITSQ: Insulin Treatment Satisfaction Questionnaire
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases

KHQ: King’s Health Questionnaire
Cardozo Linda; Kelleher Con J
Pathological conditions signs and symptoms; Urologic diseases

MAF: Multidimensional Assessment of Fatigue
Belza Basia L
Pathological conditions signs and symptoms

MENQOL: Menopause-specific Quality of Life Questionnaire
Lewis Jacqueline E; Hilditch John R
Female genital diseases and pregnancy complications

MFSQ: McCoy Female Sexuality Questionnaire
McCoy Norma L
Female genital diseases and pregnancy complications

MOS-HIV: Medical Outcome Study-HIV Health Survey
Wu Albert W, MD, MPH
Immune system diseases; Virus diseases

MSHQ: Male Sexual Health Questionnaire
Rosen Raymond C; Sanofi Aventis
Urologic diseases; Male genital diseases; Psychiatry/Psychology

MiniAQLQ: Mini Asthma Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Immune system diseases; Respiratory tract diseases

MusiQoL: Multiple Sclerosis International Quality of Life questionnaire
Auquier Pascal; Simeoni Marie-Claude; Baumstarck Karine
Immune system diseases; Nervous system diseases

NEMOQC©: New Mother Quality of Care questionnaire©
Besker-Ivasovic Ljubica, MD, PhD
Female genital diseases and pregnancy complications

NPI: Neuropsychiatric Inventory
Cummings, MD Jeffrey L
Nervous system diseases; Psychiatry/Psychology

NPS: Neuropathic Pain Scale
Galer Bradley S; Jensen Mark P
Nervous system diseases; Pathological conditions signs and symptoms

NPSI: Neuropathic Pain Symptom Inventory
Bouhassira Didier
Nervous system diseases; Pathological conditions signs and symptoms

NQ: Nausea Questionnaire
Melzack Ronald
Pathological conditions signs and symptoms

NRQLQ: Nocturnal Rhinoconjunctivitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases

ODEON: Objectif Douleur En Ophtalmologie et Neuro-ophtalmologie
Bausch & Lomb Chauvin (France); Mapi
Eye diseases

ODI: Oswestry Disability Index
Fairbank Jeremy
Disorders of environmental origin; Nervous system diseases; Pathological conditions signs and symptoms

ONYCHO: Onychomycosis Quality of Life Questionnaire
Janssen Global Services, LLC (USA); Bacterial infections and mycoses
Skin and connective tissue diseases

OSD®: Ocular Surface Disease Questionnaire
Bausch & Lomb Chauvin (France); Mapi
Eye diseases

P-RLS-SS: Pediatric Restless Legs Syndrome Severity Scale®
Boehringer Ingelheim Pharma (Germany); Mapi
Nervous system diseases; Psychiatry/Psychology

PAC-QOL: Patient Assessment of Constipation Quality of Life Questionnaire
Janssen Global Services, LLC (USA); Mapi
Pathological conditions signs and symptoms

PAC-SYM: Patient Assessment of Constipation Symptoms
Janssen Global Services, LLC (USA)
Pathological conditions signs and symptoms

PACD: Pediatric Asthma Caregiver Diary
Merck Sharp & Dohme Corp. (USA)
Immune system diseases; Respiratory tract diseases

PACT-Q: Perception of Anticoagulant Treatment Questionnaire
Sanofi Aventis; Mapi
Cardiovascular diseases; Respiratory tract diseases; Pathological conditions signs and symptoms

PAGI-QOL: Patient Assessment of Upper Gastrointestinal Disorders-Quality of Life
Janssen Global Services, LLC (USA); Mapi
Digestive system diseases; Pathological conditions signs and symptoms

PAGI-SYM: Patient Assessment of Gastrointestinal Disorders Symptom Severity Index
Janssen Global Services, LLC (USA)
Digestive system diseases; Pathological conditions signs and symptoms

PAR-ENT-QoL: Parents Questionnaire: The effects of Rhinopharyngitis and/or otitis of the child upon family life
Mapi; Pierre Fabre Medicament
Otorhinolaryngologic diseases; Respiratory tract diseases; Stomatognathic diseases

PDSS-2: Parkinson’s Disease Sleep Scale 2
Chaudhuri K Ray; Trenkwalder Claudia; Kohnen Ralf
Nervous system diseases

PEESS v2.0: Pediatric Eosinophilic Esophagitis Symptom Severity Module, version 2.0
Franciosi James P
Digestive system diseases; Hemic and lymphatic diseases; Immune system diseases

PGWBI: Psychological General Well-Being Index
Dupuy Harold J
Generic

PI-ED: Paediatric Index of Emotional Distress
GL Assessment Ltd
Generic

PKU-QOL: Phenylketonuria impact and treatment Quality Of Life Questionnaire
Mapi; Merck Serono
Congenital, hereditary, and neonatal diseases and abnormalities; Nervous system diseases; Nutritional and metabolic diseases

PQAS and PQAS-R: Pain Quality Assessment Scale and Revised Pain Quality Assessment Scale
Galer Bradley S; Gammaitoni Arnold R; Jensen Mark P
Nervous system diseases; Pathological conditions signs and symptoms

PRAC-Test: PRAgmatic Content and face validity Test
Mapi Values
Generic

PSQI: Pittsburgh Sleep Quality Index
Buysse Daniel J; Berman Susan R; Kupfer David J; et al.
Nervous system diseases; Pathological conditions signs and symptoms

QBPDS: Quebec Back Pain Disability Scale
Kopec Jacek; Abenhaim Lucien; Abrahamowicz Michal; et al.
Nervous system diseases; Pathological conditions signs and symptoms

QUAL HEMO: Haemophilia age group-specific Quality of life Questionnaire
Baxter; Mapi; QUAL HEMO scientific committee
Congenital, hereditary, and neonatal diseases and abnormalities; Hemic and lymphatic diseases

QUALIOST®: QUAlity of Life questionnaire In OSTeoporosis
Servier (France); Mapi
Musculoskeletal diseases

QUALIVEEN-30: QUALIVEEN 30 items
Bonniaud Véronique
Urologic diseases; Nervous system diseases

REFLETS: REFlective evaLuation of psoriasis Efficacy of Treatment and Severity
Abbvie (France); Mapi
Skin and connective tissue diseases

RFIPC: Rating Form of IBD Patient Concerns
Drossman Douglas
Digestive system diseases

RLS-QoL or Hopkins RLS QoL: Restless Legs Quality of Life Scale or Hopkins RLS Quality of Life Scale
Allen Richard P
Nervous system diseases; Psychiatry/Psychology

Reflux-Qual: Quality of Life Questionnaire in Gastroesophageal Reflux
Laboratoires Aventis; Amouretti Michel; Galmiche Jean-Pierre; et al.
Digestive system diseases

RhinQLQ: Rhinitis Quality of Life Questionnaire
Juniper Elizabeth, MCSP, Msc
Otorhinolaryngologic diseases; Respiratory tract diseases

SAC BDI-TDI: Self-administered Computerized version of the BDI-TDI
Psychological Applications LLC
Respiratory tract diseases; Congenital, hereditary, and neonatal diseases and abnormalities; Digestive system diseases; Immune system diseases

SAT-37: Satisfaction with Care Scale
Dorn Spencer; Drossman Douglas
Digestive system diseases

SATMED-Q: Treatment Satisfaction with Medicines Questionnaire
Ruiz Miguel A, PhD; Pardo Antonio, PhD; Rejas Javier, MD; et al.
Generic

SF-MPQ: McGill Pain Questionnaire Short Form
Melzack Ronald
Nervous system diseases; Pathological conditions signs and symptoms

SF-MPQ-2: Short-form McGill Pain Questionnaire
Melzack Ronald; IMMPACT Group
Nervous system diseases; Pathological conditions signs and symptoms

SF-QUALIVEEN: QUALIVEEN Short Form
Bonniaud Véronique; Bryant Dianne; Guyatt G; et al.
Urologic diseases; Nervous system diseases

SFI: Sexual Function Index
Merck & Co., Inc. (USA); O’Leary Michael
Male genital diseases; Psychiatry/Psychology

SHIP: Studying the Hurdles of Insulin Prescription
Pfizer (France); Mapi
Endocrine system diseases; Nutritional and metabolic diseases

SIP: Sickness Impact Profile
Bergner Marilyn; Gilson Betty
Generic

SIQR: Revised Symptom Impact Questionnaire
Bennett Robert; Friend Ronald
Generic

SIS: Stroke Impact Scale & Stroke Toolbox
Duncan Pamela W; Lai Sue M; Studenski Stephanie
Cardiovascular diseases; Nervous system diseases

SPACE-Q: Satisfaction of PAtients with Crohn’s disease
Abbott (France); Mapi
Digestive system diseases

SQLI: Stoma Quality of Life Index
ConvaTec
Surgical Procedures, Operative

Skindex / Skindex-29 / Skindex-16: SkIndex
Chren Mary-Margaret, MD
Skin and connective tissue diseases

Skindex-Teen: Skindex-Teen
Smidt Aimee C.
Skin and connective tissue diseases

TBQ: Burden of Treatment Questionnaire
Ravaud Philippe; Tran Viet-Thi
Generic

TRIM-D and TRIM-D Device: Treatment Related Impact Measure for Diabetes
Novo Nordisk (Denmark)
Endocrine system diseases; Nutritional and metabolic diseases

TranQol: Transfusion-dependent QoL Questionnaire
Klaassen Robert J; Kirby Allen Melanie; Young Nancy L
Hemic and lymphatic diseases

Trauma Questionnaire: Trauma Questionnaire
Drossman Douglas; Leserman Jane
Generic

UROLIFE / BPHQoL9: Benign Prostatic Hypertrophy Health-Related Quality of Life Questionnaire
Lukacs Bertrand; Sanofi Aventis
Urologic diseases; Male genital diseases

USP: Urinary Symptom Profile
French Association of Urology (France); Mapi
Pathological conditions signs and symptoms; Urologic diseases

VAPI: Vaccinees’ Perception of Injection
Sanofi Pasteur (France); Mapi
Respiratory tract diseases; Virus diseases

WHQ: Women’s Health Questionnaire
Hunter Myra
Female genital diseases and pregnancy complications

ZBI: Zarit Burden Interview
Zarit Steven H
Nervous system diseases; Psychiatry/Psychology