The non-exhaustive list below will help you find other sites of potential interest.

Learned Societies:

Australian Health Outcomes Collaboration

CDC HRQOL Website (centers for Disease Control and Prevention)

Cochrane Colaboration

ENCePP (European Network Centres for Pharmacoepidemiology and Pharmacovigilance)

We [Mapi Research Trust] are a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies, a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.

ISOQOL (International Society for Quality of Life Research)

ISPE (International Society for Pharmaceutical Engineering)

ISPOR (International Society for Pharmacoeconomics and Outcomes Research)

ISPQOLS (International Society for Quality-of-Life Studies)

National Institutes of Health (NIH)


C-SSRS (Center for Suicide Risk Assessment)

EORTC Quality of Life Unit


FACIT (Functional Assessment of Chronic Illness Therapy)

HealthACTCHQ (HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families. )

IQOLA (International Quality of Life Assessment)

Measurement of Health-Related Quality of Life & Asthma Control

PedsQL™ (Measurement Model for the Pediatric Quality Inventory™)


Rehabilitation Measures Database


Health Authorities:

EMA (European Medicines Agency)

FDA (U.S. Food and Drug Administration)

Mapi Websites:

ERIQA (European Regulatory Issues on Quality of Life Assessment Group)

Mapi Group

Mapi Store

PMR database (Post-Marketing Requirements database)

PRM Newsletter (PharmacoEpi and Risk Management Newsletter)

PRO Harmonization Group

PROLabels database (Patient-Reported Outcomes & drug market authorizations)

PRO Newsletter (Patient-Reported Outcomes Newsletter)

PROQOLID database (Patient-Reported Outcome and Quality of Life Instruments Database)


World Health Organization (WHO)