Experience

Mapi Research Trust is a multi-disciplinary team of research scientists, scientific librarians, and medical information professionals.

We’ve built lasting relationships with academics, pharmaceutical partners and an international network of health outcomes experts. We collect and process information in the field of Patient-Centered Outcomes (PCO), accomplishing the following as a service to the PCO community:

  • An ever growing network of experts comprising 3,500 researchers and representatives of the health authorities worldwide
  • The publication of the Patient Reported Outcomes (PRO) Newsletter worldwide to a readership of over 9,000
  • The official distribution of over +250 PRO questionnaires and their translations
  • The development of unique and specific databases in the field: PROQOLIDTM, PROLabelsTM, and PROINSIGHTTM counting all major pharmaceutical companies as subscribers as well as the FDA
  • Processing of over 7,000 information requests per year (questionnaires, translations, methodologies, copyrights, conditions of use etc.)
  • Publication of articles in peer-reviewed journals
  • Oral, poster and workshop presentations at conferences